Monday, December 7, 2009
World TTTS Awareness Day
"WORLD TTTS AWARENESS DAY is an international mobilization effort created by The Twin to Twin Transfusion Syndrome Foundation to increase awareness of the #1 problem facing multiples. It is crucial for women to get an ultrasound in the first trimester to identify multiples and then to determine whether there is one placenta or two. Women must learn the warning signs of TTTS, the 15 questions to ask at each ultrasound, and the available treatment options. World TTTS Awareness Day is about empowering parents and is filled with messages of Hope, Help and Encouragement. Your babies can make it and be healthy. Don't ever give up. Please, Get Educated, Get Ultrasounds, Ask Questions, Get Treatment and Get Involved! This day is also a remembrance day for all the babies who have had TTTS. Candles will be lit tonight across the world during the vigil and messages may also be left for your babies through lighting online candles."
We lit our candles and sat quietly and thought about where this journey has taken us. Awareness is the key. As I told our exchange student today, we knew TTTS existed but had no idea how serious it was or how devastating. We had no idea that identical twins had so many serious life altering issues that can occur...we had no idea that we could be a ticking time bomb. Our doctor did see me often enough, I did have my scans early enough and frequently enough but that was only because of scheduling mix ups and necessity for repeats due to the size of the boys. All identical twins should see a high risk specialist if one is available...there were tons available to us in London. But NONE of this would have saved our sweet Cole, nothing different would likely have happened except a lot of added early stress. God does work in wonderful ways!
Missing you so much today my TTTS angel baby...and loving you so much too. Amazed by you my TTTS survivor and loving you till I feel like I could burst. I love you both so much!!!