On the eve of the second anniversary of one of the most bittersweet days of my life I wanted to blog my thoughts on this day, on my state of mind, on where I am at. I guess I could wait till tomorrow but tomorrow will be filled with activities, outings (hockey) and the excitement of a little miracle turning two.
This day holds such special memories for me of both of my twin sons. It was a day of joy and happiness and a day of deep sorrow. It was a beginning and it was an end. If anyone had told me then and most especially 2 years and 11 weeks ago that I would be in the place I am, in the frame of mind I am, feeling as positive and blessed by the passing of Cole, I would have thought them crazy.
But here I sit, here I ponder where two years has brought me.
I am reading Margaret Trudeau's book Changing My Mind right now and have just, ironically, begun reading the chapter on the death of her son Michel. His death triggered a deep depression and she struggled to find her way in the world. But she wrote this poem for him and it really struck a cord in me...
Sweep, sweep, dear Mama, for your work is not yet done.
Sweep and weep, dear Mama,
For your lost young son
Sweep, sweep,
Weep, weep,
Mama, your day has not yet come,
Sweep and weep, Mama, for your dead son.
My depression has never been deep and dark like Margaret's but I think sometimes it has been hard to remember that my work is not done yet. There is so much that my twins have guided me to do already and so much more that their lives will bring me to in the future.
Cole and Cameron's life, from the beginning, was one of two. Two little beings, conceived together, growing together and born together. They have both shown me so much about life, so much about myself.
Cameron has taught me about miracles, about baby steps and milestones, about laughter, energy, intensity and love.
Cole has taught me that sadness is okay, tears are fine, communication is a gift. His life and his life beyond death have proven to me that there is great purpose in every life, in every moment, in every tear.
From them both I have learned about compassion, empathy, understanding, kindness, determination and love.
I will always miss my son. I will cry, I will be sad and I will ask why. But I am coming to accept it, to appreciate it. Maybe that seems to strange to some people, it seems strange to me sometimes. I am a different person than I was 2.5 years ago, I am a different person than I was 2 years ago too. I have moments where I miss the person I was then but I have many more moments that I love who I am becoming.
And so this day, though filled with the memories of the moments that I said hello and goodbye to Cole is about celebration... celebrating the amazing gifts that I have been given, celebrating this amazing little boy who defied the odds, who overcame so much and who brings us so much joy each day and celebrating the amazing little boy who watches over us from Heaven and inspires me to be all that I can be.
Today you are two... you will always be two, my dear sons, always a pair, always brothers, always twins... so let's celebrate TWO!
Happy Birthday Cameron and Cole!
Thru Grief, Hope, Dreams, Love and the blessings of God.. I am moving ahead after Twin to Twin Transfusion Syndrome changed me forever.
Friday, February 25, 2011
Friday, February 11, 2011
The Son always shines...
It’s been a while since I wrote anything. Well that’s not true…I’ve been writing a lot lately, just not on the blog.
The book is coming along well. I will admit that at times it is hard to write. Bringing back the memories is emotional for me but it is also so wonderful too. Remembering my boys together is wonderful, even in the times when both were in my womb but only one of them had a heartbeat.
I would have to say that I am amazed at what I wrote then, at how in tune I was, how well spoken I was, how open and honest. I hope that the tone of the book will come off okay and I hope that I can bring it into perspective for those struggling with the loss of a loved one, for those who have lost a baby or child and most of all, for those who have lost a child or children to TTTS.
And speaking of books… the one that I helped to co-author is finally in print. I keep forgetting to order my copies but here is a link from amazon.
At this point in time it’s only available on kindle but will be in paperback next week I think.
I am hoping writing in this book will help me to get my book published more easily.
Anyway, on to today’s ramble….
I’ve been dealing with a lot of frustration lately. I think it’s the winter blaws and cabin fever but I’m not sure. It just feels like there has been lots of short fuses lately and tons and tons of frustrations.
The other day on my way to work I was having a very bad time with it. The negativity coming from me was thick…you could have cut it from a knife. The thoughts running through my head bordered on cruel and it was just a pretty crappy day.
About 2 minutes from work there is a church which often posts unique and uplifting or thought provoking messages. That day it read “Through the storms the Son shines through”.
I read that message and I stopped…not the car but my head. My horrible thoughts drifted away, my anger resided and my mood lifted. Suddenly the reason for the anger didn’t seem as significant. Suddenly I could see the Son in my storm cloud.
I didn’t turn all of it over to God right there and then. I am human, I can’t always move on that quick. But when I left work and drove by that sign again I smiled… the Son and the sun had both broke through my storm….peace was restored!
I think this message could be used for angry moments and am most certain for sad and stressful moments too. I know I couldn’t have endured this journey without that Son shining through my storm. As I’ve read over some of the things I wrote more than two years ago I can see that, often, I did see Jesus shining through, I could feel God’s love. Grief is a difficult thing, a long journey and the loss of a loved one, especially a child, is the monster of all storms. But that Son…well it just keeps on shining through.
One last quote to leave you with…I found this on a motivational calendar…
An Irish Toast
These things I warmly wish for you –
Someone to love,
Some work to do,
A bit o’ sun
A bit o’ cheer
And a guardian angel
Always near.
Thanks to my special guardian angel..I am so glad you have helped me find my way out of some storms too...love you so much!
The book is coming along well. I will admit that at times it is hard to write. Bringing back the memories is emotional for me but it is also so wonderful too. Remembering my boys together is wonderful, even in the times when both were in my womb but only one of them had a heartbeat.
I would have to say that I am amazed at what I wrote then, at how in tune I was, how well spoken I was, how open and honest. I hope that the tone of the book will come off okay and I hope that I can bring it into perspective for those struggling with the loss of a loved one, for those who have lost a baby or child and most of all, for those who have lost a child or children to TTTS.
And speaking of books… the one that I helped to co-author is finally in print. I keep forgetting to order my copies but here is a link from amazon.
At this point in time it’s only available on kindle but will be in paperback next week I think.
I am hoping writing in this book will help me to get my book published more easily.
Anyway, on to today’s ramble….
I’ve been dealing with a lot of frustration lately. I think it’s the winter blaws and cabin fever but I’m not sure. It just feels like there has been lots of short fuses lately and tons and tons of frustrations.
The other day on my way to work I was having a very bad time with it. The negativity coming from me was thick…you could have cut it from a knife. The thoughts running through my head bordered on cruel and it was just a pretty crappy day.
About 2 minutes from work there is a church which often posts unique and uplifting or thought provoking messages. That day it read “Through the storms the Son shines through”.
I read that message and I stopped…not the car but my head. My horrible thoughts drifted away, my anger resided and my mood lifted. Suddenly the reason for the anger didn’t seem as significant. Suddenly I could see the Son in my storm cloud.
I didn’t turn all of it over to God right there and then. I am human, I can’t always move on that quick. But when I left work and drove by that sign again I smiled… the Son and the sun had both broke through my storm….peace was restored!
I think this message could be used for angry moments and am most certain for sad and stressful moments too. I know I couldn’t have endured this journey without that Son shining through my storm. As I’ve read over some of the things I wrote more than two years ago I can see that, often, I did see Jesus shining through, I could feel God’s love. Grief is a difficult thing, a long journey and the loss of a loved one, especially a child, is the monster of all storms. But that Son…well it just keeps on shining through.
One last quote to leave you with…I found this on a motivational calendar…
An Irish Toast
These things I warmly wish for you –
Someone to love,
Some work to do,
A bit o’ sun
A bit o’ cheer
And a guardian angel
Always near.
Thanks to my special guardian angel..I am so glad you have helped me find my way out of some storms too...love you so much!
Sunday, January 23, 2011
The Ones Left Behind
Recently I have joined yet another TTTS group online within Facebook. This one is for grief support and I'll be honest, most days anyway, I think I am able to give more support than I need to receive...which makes me feel pretty good about my TTTS journey. The discussion recently came up about others views on religion after TTTS touched their lives. I've spoken on here before about the views of some, especially those who lost both of their precious babies. I always find it interesting to see how the loss of child or children changes people's views of religion. It definitely affected mine, changed it somewhat but for the most part it just secured my position that God is infinite is his love and support.
Anyway, back to what was said by some and then to what was said by me....
Some people commented that they felt like there can't be 'a God' because why would anyone want to do this to us, what did we do to deserve this 'hell' and pain. Some people believe that it is a beautiful fairytale that brings comfort to those who need it but really it's just that, a fairytale. But others felt the opposite, they felt like there must be a God, and that he must have really wanted their babies and had an amazing job for them. It made me ponder things and put my feelings into perspective and words. I think I've written some of this before but this is what I wrote to them and wish to share with you...
We are all entitled to our opinion and all grew up so differently. We all experienced TTTS in different ways too and it affected us differently. I grew up believing in a 'good' God...not the hellfire and brimstone kind, not the evil and sin sorta situation. More like God does amazing things for everyone and He has a purpose for us all. I had always wondered at people believing that God took those people home that He did because He had a special job for them. I, too, thought that it didn't seem right...why take a good person and leave a jerk here??? I have since come to believe, very strongly, that God's purpose in the whole grief and crisis journey is not about the person He takes, it's not about having a special job in Heaven for that person (though I do believe that He may give special jobs to people who are there). I believe that God is here, not for those that go before us but for those left behind and that the loss isn't about their job in Heaven but about our job on earth. I truly believe that Cole went ahead of us because there was a great purpose for me here on earth that I would need to feel this hurt, this pain, this brokeness to understand. I don't think God wants to cause us pain or wants to see us in pain. I don't believe, again, that it is about the person 'He takes from us' but rather about Him being here for us after that person is gone. I believe very strongly that I will see my son again...I believe very strongly that Cole and God guide me towards a goal...their goal. I am so very drawn to do and say things that I never was before and to me, this is my angel and my God speaking to me. I am sorry that others don't feel this way but I don't feel I am living in a fairytale...and if I am well...well at least it is a place of approaching peace and hope (I say approaching because there are still bitter moments and angry times but they grow less and less).
I've spent a lot of time talking about this subject with a few people both in person, online and on the phone lately. Some people truly support and agree with me, others look at me as if I have two heads. Some think what I say has merit (some even sent me personal messages to say thanks for this perspective) and others have shot me down. And guess what...I don't care either way. I am going to do what I feel drawn to do, I am going to be the person I feel God is pushing me to be. Do I want others to believe what I believe...no, not really. I mean I guess I'd like to think I am not alone in this thought process but what you believe is so truly personal that I don't believe we ever have a right to questions others beliefs. I do believe we have a job to share God with others and to help them see that He is there for them but is it my job to change people's minds about their religion, to convert them to mine...no way.
Something that I have stressed often though is that this is so very hard to get to, this place of peace, for some anyway. Actually it isn't the place of peace that comes first for me, it's the place of acceptance. It has taken me so long to accept that I just have no control over the major things that happen in my life. When we found out we were expecting the twins I was blown away...couldn't have seen that one coming for anything. I questioned why and how but came to a place of acceptance. When we lost Cole I questioned again and in all honesty I am not always done questioning. But right from the start I believed there was great purpose for this 'twinness' to come to my life, for Cole to be my son in Heaven and not on earth. I believed God had a plan for me, the mommy left behind. When I was in the very early stages of the loss..the first 3 months or so after he passed away...really before he was born, I was sure I knew part of the reason... I felt it MUST be to bring our family closer, to get Geoff and I working together better as parents etc. Each time that would blow up in my face, each time I would get a call from home that left me upset, angry, frustrated etc. I would question this plan or question myself. In time (okay in a very very long time) I came to realize that I just might not EVER understand fully this plan but I could accept it, I could take God into my heart and ask Him to help me get there, help me make good choices, help me be what He wants me to be...to guide me. I feel so drawn to helping others, so drawn to fundraising, raising awareness and now to writing my book. I am very certain that I was left behind for a reason and that part of this is the reason.
Incidentally, I am thinking of calling the book "The Ones Left Behind" but struggle with this since the first third of the book or so will be about the pregnancy and before the loss...but we'll see. And for those reading this who wonder what the heck I am talking about...I set a lofty goal for 2011...to turn this blog and other writing I've done into a book about our TTTS journey. So far it reads like letters to my boys but in adult tones. Some of it is conversation and interactions with others and others is just feelings, emotions and personal messages to them. I hope that it will all come together to show how much my boys have taught me and that being left behind with an angel watching out for you is a pretty amazing thing.
I'm going to leave this blog with another poem that was shared online in this same group...I really like it and think it captures just how I've come to feel about God...
No Footprints
I've listened to the "footprints" poem
a million times or more
Of how when only one set shows
upon the sandy shore
It is the Lord carrying us
and taking on our load
And His are the only set
of footprints that showed.
But what if when we look
there are no footprints to be found?
All we see is plain and simple
sand upon the ground.
No imprints showing that our Lord
is carrying us through life
Helping us when we feel
we can not handle all this strife.
Where is my Lord now that I've fallen
and can't seem to get back up?
So tired and lonely
trying to deal with what seems
an overflowing cup.
Where are those footprints
in the sand
to tell me He's right there?
Helping me with problems
and showing that He really does care.
Does He have favorites, OH NO,
please tell me that's not so!
By why does life seem easier
for some people that I know?
And sometimes I just scream out loud
although it seems in vain,
but often it gets harder each day
to deal with all this pain.
And then it dawned on me
as I realize how simple could it be.
I wonder why I was so blind
that I truly did not see.
It must have been a lightning bolt
that one day gave me light,
Cause out of the clear blue sky,
I finally regained my sight.
I saw a fluffy white cloud
shaped like an Angel dear.
That helped me to understand
and see things oh so clear,
That when I saw no footprints
and so often wondered why,
My Lord carried me on Angel wings,
when He decided to fly.
(by LyndyAngel)
Anyway, back to what was said by some and then to what was said by me....
Some people commented that they felt like there can't be 'a God' because why would anyone want to do this to us, what did we do to deserve this 'hell' and pain. Some people believe that it is a beautiful fairytale that brings comfort to those who need it but really it's just that, a fairytale. But others felt the opposite, they felt like there must be a God, and that he must have really wanted their babies and had an amazing job for them. It made me ponder things and put my feelings into perspective and words. I think I've written some of this before but this is what I wrote to them and wish to share with you...
We are all entitled to our opinion and all grew up so differently. We all experienced TTTS in different ways too and it affected us differently. I grew up believing in a 'good' God...not the hellfire and brimstone kind, not the evil and sin sorta situation. More like God does amazing things for everyone and He has a purpose for us all. I had always wondered at people believing that God took those people home that He did because He had a special job for them. I, too, thought that it didn't seem right...why take a good person and leave a jerk here??? I have since come to believe, very strongly, that God's purpose in the whole grief and crisis journey is not about the person He takes, it's not about having a special job in Heaven for that person (though I do believe that He may give special jobs to people who are there). I believe that God is here, not for those that go before us but for those left behind and that the loss isn't about their job in Heaven but about our job on earth. I truly believe that Cole went ahead of us because there was a great purpose for me here on earth that I would need to feel this hurt, this pain, this brokeness to understand. I don't think God wants to cause us pain or wants to see us in pain. I don't believe, again, that it is about the person 'He takes from us' but rather about Him being here for us after that person is gone. I believe very strongly that I will see my son again...I believe very strongly that Cole and God guide me towards a goal...their goal. I am so very drawn to do and say things that I never was before and to me, this is my angel and my God speaking to me. I am sorry that others don't feel this way but I don't feel I am living in a fairytale...and if I am well...well at least it is a place of approaching peace and hope (I say approaching because there are still bitter moments and angry times but they grow less and less).
I've spent a lot of time talking about this subject with a few people both in person, online and on the phone lately. Some people truly support and agree with me, others look at me as if I have two heads. Some think what I say has merit (some even sent me personal messages to say thanks for this perspective) and others have shot me down. And guess what...I don't care either way. I am going to do what I feel drawn to do, I am going to be the person I feel God is pushing me to be. Do I want others to believe what I believe...no, not really. I mean I guess I'd like to think I am not alone in this thought process but what you believe is so truly personal that I don't believe we ever have a right to questions others beliefs. I do believe we have a job to share God with others and to help them see that He is there for them but is it my job to change people's minds about their religion, to convert them to mine...no way.
Something that I have stressed often though is that this is so very hard to get to, this place of peace, for some anyway. Actually it isn't the place of peace that comes first for me, it's the place of acceptance. It has taken me so long to accept that I just have no control over the major things that happen in my life. When we found out we were expecting the twins I was blown away...couldn't have seen that one coming for anything. I questioned why and how but came to a place of acceptance. When we lost Cole I questioned again and in all honesty I am not always done questioning. But right from the start I believed there was great purpose for this 'twinness' to come to my life, for Cole to be my son in Heaven and not on earth. I believed God had a plan for me, the mommy left behind. When I was in the very early stages of the loss..the first 3 months or so after he passed away...really before he was born, I was sure I knew part of the reason... I felt it MUST be to bring our family closer, to get Geoff and I working together better as parents etc. Each time that would blow up in my face, each time I would get a call from home that left me upset, angry, frustrated etc. I would question this plan or question myself. In time (okay in a very very long time) I came to realize that I just might not EVER understand fully this plan but I could accept it, I could take God into my heart and ask Him to help me get there, help me make good choices, help me be what He wants me to be...to guide me. I feel so drawn to helping others, so drawn to fundraising, raising awareness and now to writing my book. I am very certain that I was left behind for a reason and that part of this is the reason.
Incidentally, I am thinking of calling the book "The Ones Left Behind" but struggle with this since the first third of the book or so will be about the pregnancy and before the loss...but we'll see. And for those reading this who wonder what the heck I am talking about...I set a lofty goal for 2011...to turn this blog and other writing I've done into a book about our TTTS journey. So far it reads like letters to my boys but in adult tones. Some of it is conversation and interactions with others and others is just feelings, emotions and personal messages to them. I hope that it will all come together to show how much my boys have taught me and that being left behind with an angel watching out for you is a pretty amazing thing.
I'm going to leave this blog with another poem that was shared online in this same group...I really like it and think it captures just how I've come to feel about God...
No Footprints
I've listened to the "footprints" poem
a million times or more
Of how when only one set shows
upon the sandy shore
It is the Lord carrying us
and taking on our load
And His are the only set
of footprints that showed.
But what if when we look
there are no footprints to be found?
All we see is plain and simple
sand upon the ground.
No imprints showing that our Lord
is carrying us through life
Helping us when we feel
we can not handle all this strife.
Where is my Lord now that I've fallen
and can't seem to get back up?
So tired and lonely
trying to deal with what seems
an overflowing cup.
Where are those footprints
in the sand
to tell me He's right there?
Helping me with problems
and showing that He really does care.
Does He have favorites, OH NO,
please tell me that's not so!
By why does life seem easier
for some people that I know?
And sometimes I just scream out loud
although it seems in vain,
but often it gets harder each day
to deal with all this pain.
And then it dawned on me
as I realize how simple could it be.
I wonder why I was so blind
that I truly did not see.
It must have been a lightning bolt
that one day gave me light,
Cause out of the clear blue sky,
I finally regained my sight.
I saw a fluffy white cloud
shaped like an Angel dear.
That helped me to understand
and see things oh so clear,
That when I saw no footprints
and so often wondered why,
My Lord carried me on Angel wings,
when He decided to fly.
(by LyndyAngel)
Wednesday, January 12, 2011
Heaven on Earth
I recently finished reading “Mercy” by Jodi Picoult (great author, even better name!!!). Now the book itself could leave me with a whole blogging entry of its own as it is about mercy killing. It’s a topic I don’t think I’ll ever write about but thought provoking none the less. The book is about a man who murders his wife because she is dying and she asks him to. He then spends a great deal of time trying to ‘find’ her, to find Heaven.
This passage really spoke to me...I’m pretty sure you’ll be able to guess why....
“She was sitting on top of the copier ... A million questions bubbled up in his throat. Do you miss me? Did it hurt? Are you healthy now? Do you love me? But he found himself silent, chocked by his own curiosity. ..... He thought Is she an angel? And when she nodded slightly, he grinned. Nothing had changed between them. She could still read his mind.
He understood then that heaven was what you made of it, that it differed for everyone, and that you could find it in the most unexpected places. He had been looking so hard for Maggie he had not bothered to notice when she appeared, thinking that without a requisite halo and a star in the palm of her hand, she was nothing more than a memory. But Maggie ... well, he had been seeing her like this for weeks: in the reflection of a dinner plate at Ellen’s house, or staring back from behind the bathroom mirror when he was trying to shave.
“You found me,” he whispered. .....
What a thought to ponder....Heaven is what you make of it and that you can find it in the most unexpected places...that our angels just might be around us, that Heaven might be around us, all the time. And maybe to even take it further, that we live in Heaven all of the time, we just don’t know what we are looking for or at.
I think Jodi Picoult might be on to something in a way. I am not sure about Heaven being all around us but I am quite certain that our angels are. I have a friend who has asked if I feel Cole and I would have to be honest and say, up until recently, no. I’ve wanted to, I’ve tried to envision him. You’d think that would be easy given that he looks exactly like Cameron but it’s just not like that for me. But recently I would have to say I really think I have felt, and maybe even seen him.
On Christmas Eve, amidst all the hustle and bustle and among the beautiful voices of those around me singing Silent Night I am quite certain that I felt him. I was holding Cameron on my knee with one hand and holding a candle in the other. The candle flickered and the flame almost seemed to tip sideways towards Cameron and a glow seemed to be all around him. I was overcome with such an intense feeling of longing and sadness as I pictured holding two little boys on my lap. The tears streamed down my cheeks but then I suddenly could feel warmth all over and a pressure on the side I was holding the candle with. I’d like to think that Cole was sitting on my knee at that moment too.
But I do wonder, after reading this passage from Mercy, if maybe we do look too hard for the signs of angels and Heaven and that maybe it really is right here, all around us, just waiting for us to take notice. It’s a comforting thought I think. It’s one that makes me wonder if the motivation to do things honour a lost loved one, to fundraise, to raise awareness, to support others on their journey, to speak often of that person...maybe all of those things are the ways that the loved one we miss so much is showing us that they are right here and have been all along. Again, pretty comforting. Another thought that occurred to me when reading this was about memories. The character in the book, Jamie, ponders whether the things he considered memories, the places where he saw his dead wife, the visions of her, were not memories at all but instead her angel spirit coming to him. Perhaps all it takes to see our angels is an open mind, a willing heart and the time and patience to be still.
One more comforting thing I want to share. It’s personal and completely about Cole. Well not completely. I wanted to share about my intense feelings of things being okay and being at the greatest place of peace I have ever felt since he passed away. The reason... Brian, my friend who passed away a few weeks ago. Recently I have been feeling such an intense sense of calmness and peace when it comes to Cole and I really believe that is because I believe that Brian is looking after Cole...and maybe Cole is looking after Brian too. I think that in my heart I just needed to know that Cole was being looked after in Heaven, wherever that may be. That someone was stepping into the role of parent and raising my son for me. I know that God is there for him, but let’s be honest, He’s got a lot on his plate. I am sure that God has many great parents up there for Cole but it brings me great comfort to know that one of my friends will be giving the love that he had for his kids here on earth and doing the amazing job he did as Dad to them to my son. As much as it makes me so very sad that Cole will spend his life away from me and that Brian will not be there to see his kids grow up, it also makes me feel very much at peace to know that he is there for Cole and that they will have each other.
This passage really spoke to me...I’m pretty sure you’ll be able to guess why....
“She was sitting on top of the copier ... A million questions bubbled up in his throat. Do you miss me? Did it hurt? Are you healthy now? Do you love me? But he found himself silent, chocked by his own curiosity. ..... He thought Is she an angel? And when she nodded slightly, he grinned. Nothing had changed between them. She could still read his mind.
He understood then that heaven was what you made of it, that it differed for everyone, and that you could find it in the most unexpected places. He had been looking so hard for Maggie he had not bothered to notice when she appeared, thinking that without a requisite halo and a star in the palm of her hand, she was nothing more than a memory. But Maggie ... well, he had been seeing her like this for weeks: in the reflection of a dinner plate at Ellen’s house, or staring back from behind the bathroom mirror when he was trying to shave.
“You found me,” he whispered. .....
What a thought to ponder....Heaven is what you make of it and that you can find it in the most unexpected places...that our angels just might be around us, that Heaven might be around us, all the time. And maybe to even take it further, that we live in Heaven all of the time, we just don’t know what we are looking for or at.
I think Jodi Picoult might be on to something in a way. I am not sure about Heaven being all around us but I am quite certain that our angels are. I have a friend who has asked if I feel Cole and I would have to be honest and say, up until recently, no. I’ve wanted to, I’ve tried to envision him. You’d think that would be easy given that he looks exactly like Cameron but it’s just not like that for me. But recently I would have to say I really think I have felt, and maybe even seen him.
On Christmas Eve, amidst all the hustle and bustle and among the beautiful voices of those around me singing Silent Night I am quite certain that I felt him. I was holding Cameron on my knee with one hand and holding a candle in the other. The candle flickered and the flame almost seemed to tip sideways towards Cameron and a glow seemed to be all around him. I was overcome with such an intense feeling of longing and sadness as I pictured holding two little boys on my lap. The tears streamed down my cheeks but then I suddenly could feel warmth all over and a pressure on the side I was holding the candle with. I’d like to think that Cole was sitting on my knee at that moment too.
But I do wonder, after reading this passage from Mercy, if maybe we do look too hard for the signs of angels and Heaven and that maybe it really is right here, all around us, just waiting for us to take notice. It’s a comforting thought I think. It’s one that makes me wonder if the motivation to do things honour a lost loved one, to fundraise, to raise awareness, to support others on their journey, to speak often of that person...maybe all of those things are the ways that the loved one we miss so much is showing us that they are right here and have been all along. Again, pretty comforting. Another thought that occurred to me when reading this was about memories. The character in the book, Jamie, ponders whether the things he considered memories, the places where he saw his dead wife, the visions of her, were not memories at all but instead her angel spirit coming to him. Perhaps all it takes to see our angels is an open mind, a willing heart and the time and patience to be still.
One more comforting thing I want to share. It’s personal and completely about Cole. Well not completely. I wanted to share about my intense feelings of things being okay and being at the greatest place of peace I have ever felt since he passed away. The reason... Brian, my friend who passed away a few weeks ago. Recently I have been feeling such an intense sense of calmness and peace when it comes to Cole and I really believe that is because I believe that Brian is looking after Cole...and maybe Cole is looking after Brian too. I think that in my heart I just needed to know that Cole was being looked after in Heaven, wherever that may be. That someone was stepping into the role of parent and raising my son for me. I know that God is there for him, but let’s be honest, He’s got a lot on his plate. I am sure that God has many great parents up there for Cole but it brings me great comfort to know that one of my friends will be giving the love that he had for his kids here on earth and doing the amazing job he did as Dad to them to my son. As much as it makes me so very sad that Cole will spend his life away from me and that Brian will not be there to see his kids grow up, it also makes me feel very much at peace to know that he is there for Cole and that they will have each other.
Thursday, December 30, 2010
A New Angel Among Us....
Today I gathered together with many friends to say goodbye to one of God's newest angels. Tonight I've learned that God's angels now include another wee babe as well. I find myself full to the brim with emotion and sadness and I know that it is okay, that I am okay and that this is a good place to go and cry. Not to say I didn't cry today...the largest tears fell as I watched my friend Brian's daughter say goodbye to her wonderful daddy as her mom held her. Yup, it was awful.
Tonight I want to write about my friend Brian, to remember him, to share him with you because, man, did God get an amazing angel and did we ever lose an amazing man.
I think I met Brian in 1995...but I'm not totally sure. We've been friends so long that it's hard to remember where the first time I met him was. I've known him longer than I've known my husband. I know we met at some Junior Farmer function or another (for those reading this who aren't from Ontario or aren't rural farmy folk, Junior Farmers or JF is a rural youth organization that I was very active in for many years...kinda like 4-H or FFA but with older members and, well to be honest, much more alcohol). I got to know Brian over the years as we attended dances and social events when I was a member of another club. I remember our first 'serious' discussion which ironically was a bit about death. If memory serves me correctly, Brian had been in a very serious car accident and one of the passengers had been killed...though I may have this wrong and it might just have been that he was friends with this girl who had died. It was a horrible end to an exchange year for an exchange student at the local highschool... she didn't make it back to Mexico after her exchange was over. I hadn't known this girl and had only heard a bit about the accident. I remember Brian and I talking about it at a campfire after we'd had, oh maybe just a few too many drinks. He wasn't emotional per say but he let me see a side of him that guys don't always show.
After that, it seemed, we always had a few moments for each other at whatever event we might be at. And he almost always asked me (and many other girls too) up for a dance. He loved to dance, to spin you around till you were dizzy. He'd have this big grin on his face and laugh at you and you tried to hold on for dear life.
As time went on I think I actually saw more of him than less. I moved to his area and became a member of his JF club. We attending meetings and events together and watched our kids grow up and play together occasionally. Actually I remember a distinctive parenthood memory....
When Zack was less than 3 months old we were at Brian and Annette's one night. Zack was sleeping in his car seat and Katrina, their 18 mth old (or so) at the time pulled up a stuffed chair beside him and admired him all night long. She even got out her baby and looked after him/her beside our baby. I remember Brian asking me that night how parenthood was going and commenting that it was the greatest thing ever. He was and is so right.
Time went on, we continued to see their family here and there but I got older...and retired from JF. We saw each other around the community a bit, our kids skated together.
And then tragedy struck our family. In a whirlwind of events we met with a crisis, the loss of a child and a second medical crisis all within a few short weeks. And there was Brian's family (his wife, himself, his brother and his sister in law) helping us pick up the pieces. They brought food to the house shortly after Cole passed away. I think we actually came home to food from them one day after an appointment in Toronto and then more food and visits from the girls a number of weeks later.
And when that second medical crisis happened and I found myself back in Toronto again I was pleasantly surprised to find Brian wandering in my hospital room door one evening.
He'd come with another friend of ours... someone from a totally different circle of friends, I wasn't even aware they knew each other until that moment. And as these men, these farmers away from their livelihood for a dairy conference in 'THE BIG CITY' sat in my hospital room I found myself having the most amazing conversation with my friend Brian. You see Peter, our other friend, wasn't overly comfortable with hospitals and he was spending all of his time chatting with Geoff... talking farming, feed programs, sports...anything but what was going on with us, with me, with my boys. But not Brian. No he took a seat at the end of my bed, looked me in the eye and said "And how are you really doing?" And then he listened as I told him what was happening with my boys, no I guess I should say what had already happened to my boys. He listened as I talked about Cole and how I felt. He asked questions about what would happen now, what we planned to do. He told me, more than once, how sorry he was that this had happened to us and how hard it must be for me to be where I was. I remember saying to him that I knew that he hadn't had a walk in the park medically in years past (he had a kidney transplant years prior). He replied "oh that is nothing compared to what you are going through. I can't imagine the pain you are feeling right now, can't imagine what it's like to lose a child...I am so very sorry".
Well tonight I say to Annette, to Katrina, to Cole (his son's name too)...I am so very sorry and I can't imagine the pain you are all going through. Today you said goodbye to an amazing husband, amazing dad, amazing friend. There will be a gap for years to come, a place that no one can fill. My heart aches for you.
And to Brian I say thank you. Thank you for your smiles, your laughter, your zest for life, your determination, your dedication, your love. Thank you for making me feel important at times...without even trying, I'm sure. I will miss seeing your smiling face and will forever remember you. As I said to Annette, there are a great many things this side of Heaven we are not meant to understand and this is one of them. I am sure that you are sitting with my Cole on your knee sharing stories with him...stories of JF adventures with his mom and farm adventures with his dad, of things about this great community that we live in that he didn't get to be a part of and of the things that all great dad's tell kids...the things that you've told Katrina and Cole countless times. My little one needed a good father figure up there...I wish that you were here but glad that you can have that job in Heaven too.
Take care of him for me, give him a hug and tell him his Mommy misses him....
And Cole, you give a hug back to Brian and tell him that everyone here misses him too!
Today, near the end of the funeral they played 'Angels Among Us'. I had planned to comment more on this song but realize I don't need to...you can tell by what I've wrote that Brian was 'an angel among us' already, long before he became one on Sunday. He helped me in one of my darkest hours, he gave to everyone, showed everyone how to live and is in inspiration to all. And now I can only ask that the angels that live amongst us are here to help his family pick up the pieces and find peace.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
When life held troubled times, and had me down on my knees.
There's always been someone there to come along and comfort me.
A kind word from a stranger, to lend a helping hand.
A phone call from a friend, just to say I understand.
And ain't it kind of funny that at the dark end of the road.
Someone lights the way with just a single ray of hope.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
They wear so many faces; show up in the strangest places.
To grace us with their mercy, in our time of need.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
To guide us with the light of love.
Tonight I want to write about my friend Brian, to remember him, to share him with you because, man, did God get an amazing angel and did we ever lose an amazing man.
I think I met Brian in 1995...but I'm not totally sure. We've been friends so long that it's hard to remember where the first time I met him was. I've known him longer than I've known my husband. I know we met at some Junior Farmer function or another (for those reading this who aren't from Ontario or aren't rural farmy folk, Junior Farmers or JF is a rural youth organization that I was very active in for many years...kinda like 4-H or FFA but with older members and, well to be honest, much more alcohol). I got to know Brian over the years as we attended dances and social events when I was a member of another club. I remember our first 'serious' discussion which ironically was a bit about death. If memory serves me correctly, Brian had been in a very serious car accident and one of the passengers had been killed...though I may have this wrong and it might just have been that he was friends with this girl who had died. It was a horrible end to an exchange year for an exchange student at the local highschool... she didn't make it back to Mexico after her exchange was over. I hadn't known this girl and had only heard a bit about the accident. I remember Brian and I talking about it at a campfire after we'd had, oh maybe just a few too many drinks. He wasn't emotional per say but he let me see a side of him that guys don't always show.
After that, it seemed, we always had a few moments for each other at whatever event we might be at. And he almost always asked me (and many other girls too) up for a dance. He loved to dance, to spin you around till you were dizzy. He'd have this big grin on his face and laugh at you and you tried to hold on for dear life.
As time went on I think I actually saw more of him than less. I moved to his area and became a member of his JF club. We attending meetings and events together and watched our kids grow up and play together occasionally. Actually I remember a distinctive parenthood memory....
When Zack was less than 3 months old we were at Brian and Annette's one night. Zack was sleeping in his car seat and Katrina, their 18 mth old (or so) at the time pulled up a stuffed chair beside him and admired him all night long. She even got out her baby and looked after him/her beside our baby. I remember Brian asking me that night how parenthood was going and commenting that it was the greatest thing ever. He was and is so right.
Time went on, we continued to see their family here and there but I got older...and retired from JF. We saw each other around the community a bit, our kids skated together.
And then tragedy struck our family. In a whirlwind of events we met with a crisis, the loss of a child and a second medical crisis all within a few short weeks. And there was Brian's family (his wife, himself, his brother and his sister in law) helping us pick up the pieces. They brought food to the house shortly after Cole passed away. I think we actually came home to food from them one day after an appointment in Toronto and then more food and visits from the girls a number of weeks later.
And when that second medical crisis happened and I found myself back in Toronto again I was pleasantly surprised to find Brian wandering in my hospital room door one evening.
He'd come with another friend of ours... someone from a totally different circle of friends, I wasn't even aware they knew each other until that moment. And as these men, these farmers away from their livelihood for a dairy conference in 'THE BIG CITY' sat in my hospital room I found myself having the most amazing conversation with my friend Brian. You see Peter, our other friend, wasn't overly comfortable with hospitals and he was spending all of his time chatting with Geoff... talking farming, feed programs, sports...anything but what was going on with us, with me, with my boys. But not Brian. No he took a seat at the end of my bed, looked me in the eye and said "And how are you really doing?" And then he listened as I told him what was happening with my boys, no I guess I should say what had already happened to my boys. He listened as I talked about Cole and how I felt. He asked questions about what would happen now, what we planned to do. He told me, more than once, how sorry he was that this had happened to us and how hard it must be for me to be where I was. I remember saying to him that I knew that he hadn't had a walk in the park medically in years past (he had a kidney transplant years prior). He replied "oh that is nothing compared to what you are going through. I can't imagine the pain you are feeling right now, can't imagine what it's like to lose a child...I am so very sorry".
Well tonight I say to Annette, to Katrina, to Cole (his son's name too)...I am so very sorry and I can't imagine the pain you are all going through. Today you said goodbye to an amazing husband, amazing dad, amazing friend. There will be a gap for years to come, a place that no one can fill. My heart aches for you.
And to Brian I say thank you. Thank you for your smiles, your laughter, your zest for life, your determination, your dedication, your love. Thank you for making me feel important at times...without even trying, I'm sure. I will miss seeing your smiling face and will forever remember you. As I said to Annette, there are a great many things this side of Heaven we are not meant to understand and this is one of them. I am sure that you are sitting with my Cole on your knee sharing stories with him...stories of JF adventures with his mom and farm adventures with his dad, of things about this great community that we live in that he didn't get to be a part of and of the things that all great dad's tell kids...the things that you've told Katrina and Cole countless times. My little one needed a good father figure up there...I wish that you were here but glad that you can have that job in Heaven too.
Take care of him for me, give him a hug and tell him his Mommy misses him....
And Cole, you give a hug back to Brian and tell him that everyone here misses him too!
Today, near the end of the funeral they played 'Angels Among Us'. I had planned to comment more on this song but realize I don't need to...you can tell by what I've wrote that Brian was 'an angel among us' already, long before he became one on Sunday. He helped me in one of my darkest hours, he gave to everyone, showed everyone how to live and is in inspiration to all. And now I can only ask that the angels that live amongst us are here to help his family pick up the pieces and find peace.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
When life held troubled times, and had me down on my knees.
There's always been someone there to come along and comfort me.
A kind word from a stranger, to lend a helping hand.
A phone call from a friend, just to say I understand.
And ain't it kind of funny that at the dark end of the road.
Someone lights the way with just a single ray of hope.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
They wear so many faces; show up in the strangest places.
To grace us with their mercy, in our time of need.
Oh I believe there are angels among us.
Sent down to us from somewhere up above.
They come to you and me in our darkest hours.
To show us how to live, to teach us how to give.
To guide us with the light of love.
To guide us with the light of love.
Friday, December 24, 2010
Christmas in Heaven
I see the countless Christmas trees
Around the world below,
With tiny lights like heaven's stars
Reflecting in the snow.

...The sight is so spectacular
Please wipe away that tear
For I'm spending Christmas
With Jesus Christ this year.
I hear the many Christmas songs
That people hold so dear
But earthly music can't compare
With the Christmas choir up here.

I have no words to tell you
The joy their voices bring
For it's beyond description
To hear the angels sing.
I know how much you miss me,
Trust God and have no fear
For I'm spending Christmas
With Jesus Christ this year.

I can't tell you of the splendor
Or the peace here in this place.
Can you imagine Christmas
With our Savior, face to face?
May God uplift your spirit
As I tell Him of your love
Then pray for one another
As you lift your eyes above.

Please let your hearts be joyful
And let your spirits sing
For I'm spending Christmas in Heaven
And I'm walking with the King!"
By Wanda Bencke
Merry Christmas Cole! I know that you know how much we all love and miss you. Sometimes it is so hard to think that you have the better life, that you are better off up there than here with us... I guess really it's that it's hard to remember to be happier that you are there than here with me and your family...unwrapping presents, laughing, playing and giving us hugs. But you are, I know it and will try to only allow myself a few moments of wishing you were here giving me a Christmas hug!
Happy Holidays special son, may it be as blessed as the blessings you bestow on us daily!
I see the countless Christmas trees
Around the world below,
With tiny lights like heaven's stars
Reflecting in the snow.

...The sight is so spectacular
Please wipe away that tear
For I'm spending Christmas
With Jesus Christ this year.
I hear the many Christmas songs
That people hold so dear
But earthly music can't compare
With the Christmas choir up here.

I have no words to tell you
The joy their voices bring
For it's beyond description
To hear the angels sing.
I know how much you miss me,
Trust God and have no fear
For I'm spending Christmas
With Jesus Christ this year.

I can't tell you of the splendor
Or the peace here in this place.
Can you imagine Christmas
With our Savior, face to face?
May God uplift your spirit
As I tell Him of your love
Then pray for one another
As you lift your eyes above.

Please let your hearts be joyful
And let your spirits sing
For I'm spending Christmas in Heaven
And I'm walking with the King!"
By Wanda Bencke
Merry Christmas Cole! I know that you know how much we all love and miss you. Sometimes it is so hard to think that you have the better life, that you are better off up there than here with us... I guess really it's that it's hard to remember to be happier that you are there than here with me and your family...unwrapping presents, laughing, playing and giving us hugs. But you are, I know it and will try to only allow myself a few moments of wishing you were here giving me a Christmas hug!
Happy Holidays special son, may it be as blessed as the blessings you bestow on us daily!
Monday, December 13, 2010
Things I wish I could forget....
So today is just a truly crappy day. It's been crappy since the moment I woke up...in tears. I hate this day and I am not sure I will ever NOT hate this day. I am very certain that in time this day will have joyful memories...of things we do, of things the boys do or say. But right now it just SUCKS!!! I often hear from people when I say things about Cole and our loss that we are so lucky we have Cameron. And I know this, appreciate this, cherish this. But today the joy of having a surviving twin is so heavily overshadowed by the loss of his twin brother. Even when I think back to that day there aren't really any joyful memories of Cameron that day with the exception of the words 'baby B is alive or baby B seems to be doing okay' but the reality was that he wasn't okay and was very sick and that day was filled with stress, pain, devastation and heartbreak.
I am wishing I could forget these memories, wishing that I only had the memories of the good times in the twin pregnancy or even just the memories up until about 11:00 that day....
It went a bit like this...
The last good memories end with us going over to Sick Kids for a fetal echo. Our porter's name was Claude and he asked if this was our first baby. We explained our situation and that this was baby boys #3 and #4. He laughed and joked that we should keep going and make a baseball team...we laughed back and said no, hockey. Soon we were at the heart specialists office and taken to the ultrasound machine.
The doctor doing the scan asked which side the recipient baby was on and then sucked in his breath sharply. Without looking up at us or stopping he said “This baby has no heartbeat. Your baby has died. I’m sorry, your baby passed away”. And the world crashed around us. All I wanted to do was curl up and cry, all I wanted was to be left alone with Geoff to cry and hold each other. Instead this doctor was all business and after a minute or two he said “I’m very sorry Mrs. Tummers, this should have been checked before you left Mt. Sinai but I still need to scan the other baby... please you need to calm down so I can scan you.” The doctor told us that all seemed fine with the other baby. We asked him what this meant for the other survivor and he said everything should be fine but Dr. Ryan will confirm that. But what about the other baby…what will happen now was my question. And the most devastating (and incorrect answer) was given to me…your body will just absorb him.
And I sobbed and sobbed. Not only was I not going to get to have my twins together, not only was I now the mother of an angel baby, but I was never going to meet my angel, it would be like my baby never existed. He was wrong, this was explained to me later that day but at the time it was the most devastating thing.
Finally after what seemed like an eternity he was done. Geoff had gone and called our families and a few friends and we were left to wait for our porter to come back for us. I remember looking around at this area of Sick Kids and thinking 'if I wasn't so shattered I'd appreciate all they've done to make this place look cool for kids but I really hope I never see it again'. (ironically we ended up in this very spot 4 days later for a fetal MRI on Cameron's brain...I lost it all over again!)
I remember very vividly my parents arriving that day. Oh how we cried. I am so very grateful they were there but wished (and still do)that I didn't have to break their hearts with this horrible news. Learning shortly after they arrived that not only had we lost one of our sons but that the other was shockingly very ill was just about all I could handle. I'll never forget the doctor saying to me that they were doing all they tests on Cameron's brain to 'make sure they weren't saving a very sick baby'.
The second hardest thing, after learning that one of my children was gone to Heaven, actually occurred 2 days later when I had to explain to my two other children that our dreams of twins were shattered, that they now had a brother in Heaven. This is the memory that got me today as I lay in bed this morning. It just broke my heart that day.
I know that in time there will be happier thoughts of this day and that I will be able to cope better with it. I have hope...I didn't lose it that day or in the days that followed. I know that Cole is in an amazing place and that he is the lucky one. He will never live with stress, with illness, with pain, with heartache. I know he lives with loss, I know that he misses us all. But he has God and Jesus to comfort him and he is very aware of what the reasons are for him to be there and us to be here. And as life continues on and I can see those reasons more clearly I am sure that it will be easier for me too. But for now, for today, I am going to cry, I am going to feel a heartwrenching sadness, I am going to wish that life was different. It's just where I am, it's just who I am.
Tomorrow is a new day.
P.S. We placed this angel tree topper on our tree today. We've been trying to come up with a tree topper since shortly after we lost Cole and we thank 'aunt' Diane for this great idea.



P.S.S. For anyone who is worried that I live in a perpetual world of depression and sadness...please know that today (and a good chunk of December) is a pretty crappy time for me but most days really are filled with the joy of raising all of our boys and the miracle that they are. What I post here and on facebook are just minor moments in my world and don't reflect my everyday life. But thanks for your prayers and concerns...they mean so much to me!
I am wishing I could forget these memories, wishing that I only had the memories of the good times in the twin pregnancy or even just the memories up until about 11:00 that day....
It went a bit like this...
The last good memories end with us going over to Sick Kids for a fetal echo. Our porter's name was Claude and he asked if this was our first baby. We explained our situation and that this was baby boys #3 and #4. He laughed and joked that we should keep going and make a baseball team...we laughed back and said no, hockey. Soon we were at the heart specialists office and taken to the ultrasound machine.
The doctor doing the scan asked which side the recipient baby was on and then sucked in his breath sharply. Without looking up at us or stopping he said “This baby has no heartbeat. Your baby has died. I’m sorry, your baby passed away”. And the world crashed around us. All I wanted to do was curl up and cry, all I wanted was to be left alone with Geoff to cry and hold each other. Instead this doctor was all business and after a minute or two he said “I’m very sorry Mrs. Tummers, this should have been checked before you left Mt. Sinai but I still need to scan the other baby... please you need to calm down so I can scan you.” The doctor told us that all seemed fine with the other baby. We asked him what this meant for the other survivor and he said everything should be fine but Dr. Ryan will confirm that. But what about the other baby…what will happen now was my question. And the most devastating (and incorrect answer) was given to me…your body will just absorb him.
And I sobbed and sobbed. Not only was I not going to get to have my twins together, not only was I now the mother of an angel baby, but I was never going to meet my angel, it would be like my baby never existed. He was wrong, this was explained to me later that day but at the time it was the most devastating thing.
Finally after what seemed like an eternity he was done. Geoff had gone and called our families and a few friends and we were left to wait for our porter to come back for us. I remember looking around at this area of Sick Kids and thinking 'if I wasn't so shattered I'd appreciate all they've done to make this place look cool for kids but I really hope I never see it again'. (ironically we ended up in this very spot 4 days later for a fetal MRI on Cameron's brain...I lost it all over again!)
I remember very vividly my parents arriving that day. Oh how we cried. I am so very grateful they were there but wished (and still do)that I didn't have to break their hearts with this horrible news. Learning shortly after they arrived that not only had we lost one of our sons but that the other was shockingly very ill was just about all I could handle. I'll never forget the doctor saying to me that they were doing all they tests on Cameron's brain to 'make sure they weren't saving a very sick baby'.
The second hardest thing, after learning that one of my children was gone to Heaven, actually occurred 2 days later when I had to explain to my two other children that our dreams of twins were shattered, that they now had a brother in Heaven. This is the memory that got me today as I lay in bed this morning. It just broke my heart that day.
I know that in time there will be happier thoughts of this day and that I will be able to cope better with it. I have hope...I didn't lose it that day or in the days that followed. I know that Cole is in an amazing place and that he is the lucky one. He will never live with stress, with illness, with pain, with heartache. I know he lives with loss, I know that he misses us all. But he has God and Jesus to comfort him and he is very aware of what the reasons are for him to be there and us to be here. And as life continues on and I can see those reasons more clearly I am sure that it will be easier for me too. But for now, for today, I am going to cry, I am going to feel a heartwrenching sadness, I am going to wish that life was different. It's just where I am, it's just who I am.
Tomorrow is a new day.
P.S. We placed this angel tree topper on our tree today. We've been trying to come up with a tree topper since shortly after we lost Cole and we thank 'aunt' Diane for this great idea.



P.S.S. For anyone who is worried that I live in a perpetual world of depression and sadness...please know that today (and a good chunk of December) is a pretty crappy time for me but most days really are filled with the joy of raising all of our boys and the miracle that they are. What I post here and on facebook are just minor moments in my world and don't reflect my everyday life. But thanks for your prayers and concerns...they mean so much to me!
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